Organising for Data Accessibility Standardising and Improving Access to Public Healthcare Data in Region Västra Götaland
Ladda ner
Typ
Examensarbete för masterexamen
Master's Thesis
Master's Thesis
Program
Quality and operations management (MPQOM), MSc
Publicerad
2023
Författare
Rutström, Simon
Jörnelius, William
Modellbyggare
Tidskriftstitel
ISSN
Volymtitel
Utgivare
Sammanfattning
External healthcare data access is essential for improving healthcare qual-
ity. It is provided to: researchers, public health organisations, and private
organisations. However, there is a balance between data accessibility and
patient integrity. Together with the Centre of Registries (RC) in Region Västra
Götaland (VGR), data accessibility is investigated and given learnings that can
be applied to improve processes and organisation.
This thesis investigates and maps the current process for healthcare data
withdrawal within VGR in order to deepen the knowledge of healthcare data
accessibility and make recommendations from new learnings. The thesis work
has used a qualitative approach where semi-structured interviews have been
conducted with people with various backgrounds and hands-on experience
in healthcare data accessibility. The collection of data and interviews were
understood through relevant guidelines and thematic grouping. Parallel to
the data analysis a rigorous literature review has been done to fit the research
agenda and connect with the findings.
The findings show aggregated themes and implications from the interviews
that answer the setting of how data accessibility looks like today in VGR. Along
with the theoretical framework the findings have been connected and discussed
to understand learnings that could improve the current process.
Firstly, streamlining the data withdrawal process and implementing a digital
portal can improve efficiency. Secondly, ensuring patient integrity and data
confidentiality through cross-scientific reviews is essential. Lastly, expanding
beyond research can benefit other stakeholders. The thesis offers practical
recommendations towards RC to help improve external data accessibility in
VGR.
Beskrivning
Ämne/nyckelord
healthcare data , accessibility , research , patient integrity